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billysmom
03-23-2009, 10:36 PM
Just wanted to post an update before I head to bed. I promise to post the birth story and pictures as soon as I can. Forgive me if this is a bit scatter-brained of incomplete. I didn't get much sleep last night and I've been on such an emotional roller coaster that I feel very worn out and even more tired. Both girls are still in the NICU. It seems that everytime I think we're making progress, I return only to find another setback.

Megan is currently doing better of the two. She had been really mucousy and coughing and vomiting a lot. She's doing better today and has been tolerating her feeds better. She's being fed through a naso-gastric tube, although she's working towards bottle and breast now that she's not coughing and struggling to breath as much. They've worked on weaning off of the temperature support and she should be in an open-air crib tomorrow if everthing goes well through the night tonight.

Rebecca - who was originally doing very well and I expected to leave the NICU soon - has gone backwards. The neonatologist came to my room around dinnertime and told me that she still hadn't passsed any meconium or stool yet and had very little urine output. They did an x-ray and found that she had a blockage in her bowels. I forget the actual terms that she used. She said that everything was backing up and her stomach was filling with the air she swallowed while she ate. They stopped breast and bottle feeding and started her on IV fluids and IV antibiotics. She now has a tube in her mouth that goes to her stomach to help suction out what's in there, including the air. They suspect it's an infection and are treating with antibiotics until they get the cultures back. When I went to visit the girls a little while ago, she also needed to be put on a nasal canula because she was starting to have problems keeping her blood oxygenated. They hope that will work and she won't need to go on a C-Pap

I had been holding up pretty well until I went in tonight after DH took DS home. It was just me and the babies. When I walked up to see Rebecca, I started getting upset because she went from being in an open-air isolette last night with only a few monitors to being in an incubator with all of these tubes and wires coming out of her. So much backwards progress in 24 hours. Fortunately, as I was getting ready to leave the nursery, she did pass some meconium and peed a little. She's not out of the woods yet, but it's a good sign and much needed after an emotional visit.

I know that we're fortunate that they're doing as well as they are. They were born at 36 weeks and 4 days, and both had good birth weights. I'm hoping both of those things will work in their favor. I know that most of the other babies in their NICU room are doing worse and have more problems that are more severe. It doesn't stop me from being so emotional everytime I see them. I'm having a much better recovery from this c/s than I did the first time. I would gladly trade it in order to take away their issues.

If you're still reading this far - thanks. I guess I needed to get some of this out if I have any hope of trying to sleep last night. I need to get more than the 3 or 4 hours I got last night, especially since I'll be waking up to pump throughout the night.

I'll try to keep posting updates as I get them.

KatieLou
03-23-2009, 10:42 PM
(((hugs)))

I will be keeping you and your little gals in my thoughts and prayers.

Peeka2
03-23-2009, 10:44 PM
Oh honey you hang in there! I can not even begin to imagine what an emotionally rollarcoaster this is!! I hope they are much better tomorrow! They are beautiful little girls!!

MrsGinCamarillo
03-23-2009, 10:44 PM
I am so sorry you all are having a rough time. I'd be willing to call you or PM you my # if it would help at all (or you just want a shoulder to cry on).

Our twins were born at 35 weeks (one is handicapped, so they both had a very long NICU stay).

Take care,
Sarah

Tweet
03-23-2009, 10:47 PM
I'm thinking of you. The NICU is hard..it is a lot of going one step forward and two steps back. My oldest was born at 32 weeks and was in the NICU for 15 days.

I hope that you are getting lots of support. Just a thought, but Dr Sears has a great book about preemies. Maybe someone could pick it up for you? It definitely helped me during that time. I also went to the support meetings at the unit when I could..that helped me feel a little less alone. No one else really understood.

Big hugs to you and lots of healing vibes to your little angels.

MrsKitty
03-23-2009, 10:47 PM
I hope you get a better sleep tonight. Thats alot to swallow, and I am sure you are feeling really emotional. I will be keeping your family in my thoughts. *hugs*

Babyhellfire
03-23-2009, 10:48 PM
(((hugs)) I am sorry things have gone backwards
Your whole family is in my thoughts.

JudyJudyJudy
03-23-2009, 10:48 PM
I'll be thinking about all of you. :hug:

jessiehannan
03-24-2009, 12:23 AM
:hug: I am thinking about y'all.

Justicedog
03-24-2009, 06:39 AM
I'm sorry about the setback, although it seems a very good sign that Rebecca passed some stool. I'll be thinking of you and your babies.

JulieBaby
03-24-2009, 06:58 AM
Hugs to you. I hope your girls will soon do better and will be able to go home with you.

I know what a tough time this must be for you, my boys were born at 34 weeks 3 days and were in the NICU for 8 and 9 days.

Dont you worry, babies are very tough and they will soon bounce back :)

PrincessEmilysMommy
03-24-2009, 08:01 AM
It doesn't matter how big or small your baby is, the NICU is a very difficult place. How about Kangaroo care?

They will continue to be in my prayers.

tata
03-24-2009, 08:11 AM
:hug: What others are going through doesn't diminish what you and your babies are going through. Thinking of you and the girls often.

alejorge
03-24-2009, 08:20 AM
(((hugs)))

I am sorry that things are going a little backwards with your beautiful babies. Hopefully soon they will be off all of the equiptment and be able to go home and you will get to enjoy them.

I will keep you and you family in my thoughts.

Nipple_nectar
03-24-2009, 09:26 AM
Your beautiful daughters are big and strong, you did so well with the pregnancy, getting so far! Now they are in good hands and just need some time to grow. Take a deep breath when visiting the NICU, I know it is scary but it will soon pass and you'll be at home with your princesses, sniffing their heads while they sleep:)

Hang in there and come here often, we will hold you and your family in the light, as long as you need {{{hugs}}}

Check with hospital staff to see if there is a lactation consultant available for one on one guidance for you and your babies, making sure to enable them to transition from the NICU to a successful BFing relationship, it will help.

What type of pump are you using and how long and often did they instruct you to pump? I am sending you prayers of strength and courage times TWO! I have been there with one and I know it's hard, really hard. Please PM me if you need anything at all.

Jen~ I know your reading, remember you can call me any time for help:)

HammBugga
03-24-2009, 12:06 PM
I am so sorry you are going through this. Reading your post took me back to when DS1 was in the NICU. He was born at 36w5d and had some of the same problems you described. I know how scary and upsetting this time is for you. You are in my thoughts and please let me know if there is anything I can do to help.

TheLorax
03-24-2009, 12:12 PM
I will hold you and your daughters in my thoughts and prayers.