rock__
05-25-2009, 06:39 PM
Thanks all for the good thoughts and prayers. It's been an emotionally trying few days to say the least. We went into the peds expecting something was off, but no idea she'd be in the ER and diagnosed with sever aortic stenosis within hours. I'd never even heard of the defect before Thursday night, and I still wish I'd never heard the word, but since it's what she has, I'm glad she's got doctors who know what they are doing and skilled in dealing with it.
They got her in for the heart cath the next day, and while it was scary for multiple reasons, they did a good job, and got her good enough to go home. She's always going to have this problem, and eventually, we are told, she'll most likely have to have her valve replaced. But for now we are just taking one day at a time and thankful that she is ok and at home and can go on living a pretty typical life. No competitive sports, but with her father and I as her parents that sort of thing probably wasn't part of her future to begin with, lol.
I felt like we were in the hospital forever, it's hard to believe how much one's life can change in just a matter of a few days. But I'm so thankful she's made it through what she has, and she's still so healthy and now home with us, nursing strong and content. The poor baby who was next to her in the PICU was born with the same defect and he wasn't nearly so lucky. He had to have open heart surgery and had been in the hospital for a month already. I'm still thinking of him and his family. I hope they'll be home safe with their baby too.
They got her in for the heart cath the next day, and while it was scary for multiple reasons, they did a good job, and got her good enough to go home. She's always going to have this problem, and eventually, we are told, she'll most likely have to have her valve replaced. But for now we are just taking one day at a time and thankful that she is ok and at home and can go on living a pretty typical life. No competitive sports, but with her father and I as her parents that sort of thing probably wasn't part of her future to begin with, lol.
I felt like we were in the hospital forever, it's hard to believe how much one's life can change in just a matter of a few days. But I'm so thankful she's made it through what she has, and she's still so healthy and now home with us, nursing strong and content. The poor baby who was next to her in the PICU was born with the same defect and he wasn't nearly so lucky. He had to have open heart surgery and had been in the hospital for a month already. I'm still thinking of him and his family. I hope they'll be home safe with their baby too.