Well, figgured I could convince everyone I wasn't dead.... Yet... *chuckles*.

Since I've last written alot has gone on with the little one...

Lets see, He's had a few more surgeries... One to recconnect his ostomy, and one on his eyes to combat ROP. He's also now on medicines for anemia and high blood pressure as well as hypertension, not to mention the steroids for his lungs as well as the lasix for the fluid retention. Then we've also been transferred from Albany to Syracuse and back...  I've moved from Monticello to a smaller town called Hurleyville... Been home for a week or two, came back to the Ronald McDonald house and I plan on bouncing between here and home on the regular.

He's still in the hospital, STILL having breathing problems, however, He's eating like a champ which is why they won't put Clinton back on the SiPap (he's on high-flow now). Tey've even talked abut transferring him to the PICU because he's getting too old/big for the NICU. Mind you he's nearly five months now... The road is still long, rough and filled with various potholes and obstacles before I can even begin to think about getting him home and having him there with specialists and theripists comming right to my house. They've also considered sending him to a rehab facility to try and get him off the breathing equipment. 

If only he'd cooperate instead of being stubborn like his father and myself... We'd be getting somewhere...

Terry of course is taking this all in stride... Bless his little heart. For a two year old he's amazingly well behaved (any of you out there who own your own two year olds know what I'm saying). 

Well, I gotta run, chasing Terry is a never ending chore.... 

Tags: Moved Stillinalbany Still Dried Up

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